Role Strain, Self-Compassion, and Wellbeing in ALS Caregiving: A Mediation Analysis (NCCIH F31)
Amount
Not specified
Deadline✓ Verified
Aug 31, 2028
Funder
National Center for Complementary and Integrative Health
Eligible
open to all
About This Grant
PROJECT SUMMARY Amyotrophic lateral sclerosis (ALS) is a progressive and fatal neuromuscular disease that affects an estimated 33,000 individuals in the US, with this number projected to increase by 10% by 2030. People living with ALS (PALS) require increasingly complex physical, cognitive, and behavioral support over the course of their illness. This support is usually provided by informal caregivers, such as spouses, family members, or friends, who manage multiple responsibilities and are essential to daily activities and personal care of PALS. Caregivers frequently report concerns about managing their own health and wellbeing due to the intensity of their caregiving role. The construct of self-compassion has garnered attention in intervention research as a promising target for reducing stress and promoting wellbeing. However, self-compassion is most commonly measured as a global characteristic, rather than within the context of complex caregiving for PALS. Additionally, conceptualiz
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